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Site Updated: 6 March, 2010
It's 10 Mar, 2010 22:35:34 in NZ
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Copyright © 2010, Granulosa Cell Tumour Foundation New Zealand; All international rights reserved
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5 Things You Should Know About Granulosa Cell Tumours
Some basic facts about GCT...
How Can I Help?
We are often asked "How can I help the foundation."  Well, the best way to help us continue our efforts would be to help us raise funds for our research.
Here are 3 ways to help generate funds for research that won't impact your budget:
  • Hold a garage sale, maybe even enlist your neighbours, and donate the proceeds to GCTF NZ
  • Get your friends, neighbours, and colleagues to sponsor Powel in the Boston Marathon
  • Do your on-line shopping through our Amazon links

  • The Amazon links can be amazingly effective as has been proven by one GCTF Warrior, Sian in Nova Scotia.
    In 2009 Sian, alone, generated over $1,000 for us and this year, so far, she has already generated $900!
    The secret...she also orders her office supplies using our links.

    Where Could We Meet?
    Last month we asked where would be your preferred location if we hold an organised meeting at some point in the future.  We haven't, as of yet, had an overwhelming response, but so far the leading cities are (in order) Boston, New York, [San Francisco and Washington, tied]
    Click here if you want to add you vote

    Welcome to the Granulosa Cell Tumour Foundation New Zealand

    Granulosa cell tumours (GCT) are a rare form of ovarian cancer.   Statistics show that they make up a relatively small percentage of all ovarian cancers and GCT has therefore received less attention from researchers than some other cancers.

    Because GCT is rare, many oncologists are not readily familiar with the disease, few claim to be specialists in its treatment, and some doctors, reportedly, still think that GCT is not considered to be a cancer.

    Founded in 2004, the mission of the Granulosa Cell Tumour Foundation New Zealand is to:

    • Provide women with information about this disease and give them knowledge that they can share, in turn, with their medical team; and
    • Raise money to support GCT-specific research with the goal of developing more effective treatments

    Why we push for research

    One of the most common descriptions of GCT in the medical community is: "Granulosa cell tumor of the ovary is an uncommon tumor of low malignant potential (LMP)" and many articles add that GCT has a "low rate of recurrence".

    Often this is presented as a comforting factor, implying that you do not have to worry that much about recurrence or dying of the disease.   It is also known, however, that "Low-grade ovarian cancers and LMP tumours generally resist conventional cytotoxic chemotherapy."    Several articles have also stated that 50% - 80% of women with recurrent GCT will die from the disease, just as our Founder, Sladjana (Sofi) Crosley, did.

    That is why we need research on GCT and why we have established the "Sladjana M. Crosley Fund for GCT Research".  This is not always a "benign" disease and can recur at any point over your lifetime, even up to 35 years after your diagnosis.  

    We need "Warriors"

    Medical discoveries don't happen without research, and research doesn't happen without a steady flow of funding.  Because we know that GCT tends to be non-responsive to normal, cytotoxic chemotherapy we have commissioned research designed to find molecular pathways through which GCT might be better controlled, and possibly cured.   We need you to support this battle and want to enlist you as a "GCTF Warrior".   For a minimum, annual donation of at least $25 NZD, or more if you can possibly afford it, we will register you as a "GCTF Warrior". By clicking on the "Donate Today" link you make a statement to yourself and us that you recognise the importance of this research and are joining the fight!

    In return, we will provide you with every bit of insight and information we can muster to help you and your medical team.   This includes complete updates from our research teams as we receive them; unrestricted access to our Case History database; the right to post messages on our forum; periodic newsletters from the foundation; and more services we are continuing to develop.

    GCTF New Zealand is a registered, 100% volunteer foundation

    The foundation is registered with New Zealand Inland Revenue and the US Internal Revenue Service.  When you donate to GCTF NZ you can depend on 100% of that donation going to researchers due to the fact that we are a totally volunteer organisation and have received a grant from the NZ Lottery Grants Board to help defray operating expenses.   We pay no salaries and no director's fees.  When you donate your hard-earned money you deserve to know that it is going to the purposes for which you donated!

    To register as a supporter of GCTF New Zealand please provide the information below.
    Rest assured that we do not share ANY information about our registered users with ANY other organisation!

    Register
    Email:
    Password:
    Confirm Password:

    I am a:  GCT Survivor  
    I found this Foundation via 
    First Name: Last Name:

    General Location  For our internal use
    City: State/Province:
    Country:  

    Privacy Policy

    As a supporter of GCTF New Zealand you can update the information below.
    We do not share ANY information about our registered users with ANY other organisation, we simply use it for internal purposes!

    My Profile
    Email:
    Password: (only if you want to change it)
    Confirm Password:

    I am a:  GCT Survivor  

    First Name: Last Name:

    General Location  For our internal use
    City: State/Province:
    Country:  

    Privacy Policy

    Being a "Cell Mate" means making yourself available as a contact/resource for someone else in your area who is diagnosed with GCT.  It is also a way to find out if there are others in your area with GCT in case you want to share experiences or just find some personal support in your fight with this rare disease.

    The "Cell Mate" register will list the Country, State/Province, and City where we have registered "mates".  Clicking on the links will give someone the chance to compose an e-mail enquiry that we will then forward to the registered "Cell Mates" in that city.  Then it will be up to the "mates" to respond back and take the situation from there.

    To register as a "Cell Mate" simply provide the basic information below.
    Rest assured that we do not share ANY information about our registered users with ANY other organisation!
    And remember, if anyone ever wants to contact you, WE will send you an email with their request and you will have the option to reply.



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